| Gem | Posted: 04 June 2014 - 11:17 AM |
Our AC is acting up and after our encounter with the paramedic I posted about in the Cleanup Help section we're scared to death to call any AC repair places but being we live in the south going without the AC could kill us. I'm not sure what do to. Anyone have any suggestions? Here's the link to my previous post for reference. http://hoardingcleanup.com/message_board/?msgbrd=3&topic=8611 | |
Replies (83)
| Dave | Posted: 01 March 2015 - 05:02 PM |
Gem, Unfortunately reality TV is one of Modern America's substitutes for games at the Coliseum. One positive thing I see that you can consider in all that is that you would have the opportunity to provide a positive "6 months later" followup report to encourage others. ( but you would have to plan for how that will happen during the cleanup phase too. ) | |
| Gem | Posted: 01 March 2015 - 01:52 PM |
I contacted Cory on FB and called him back after chickening out the first day because I was so nervous so called him back on the 2nd. After telling him how my Mom and I are on SSI and the Sahara Desert drought of help in MS he said the only option it sounded like we really have is the TV show since we don't have $3,000 to $10,000 to pay a company. At first I thought well it's not like anyone gives a flying fig about my Mom and I so being on TV wouldn't be as bad. Now that I've had longer to think about it though as much as we desperately need the help I'm nervous and afraid of the thought of appearing on TV and people who watch the show regularly seeing my Mom and I and remembering us. Also the fact that a TV show would be a permanent visual record of how badly we allowed our home to get, what it looks like in here and the sad state of our lives. | |
| dave | Posted: 13 February 2015 - 08:11 PM |
Gem, | |
| Dianne | Posted: 21 December 2014 - 08:34 AM |
Gem, I totally agree with what Tat and Mel said. It is so easy to blame ourselves but regardless of our circumstances and health problems of any kind we must remember that we are worthy of love and respect. You have shown tremendous strength in continuing to search for help as well as taking care of your mother and yourself. Getting out to doctor appointments is not an easy thing. Give yourself credit for that strength. That comes from something very solid inside you that will not give up. You have a huge gift in that quality! Do contact Cory for advice. He makes himself accessible to everyone. To reaffirm what Tat and Mel said ~ you are an important part of this community and we love you, we accept you as you are and we are here to support you. Use every resource you can for physical, mental emotional and spiritual support. A clean home is in your future! God bless ~~ | |
| Mel99 | Posted: 21 December 2014 - 02:55 AM |
Hi Gem, Just want to second some of the things Tatouilia said in her last post. You are always very welcome here. Sometimes discussions get missed but you are a part of this community and we care about you! You are important. I also want to tell you that dealing with mental illness can be incredibly difficult and getting the right meds in place to get you on track can make all the difference in the world. Please take care of yourself and keep us posted on what's going on with you. Much love from me too! | |
| Tatoulia | Posted: 19 December 2014 - 09:58 PM |
Gem, mental illness is as serious, and in my opinion, more serious than physical illness. (My apologies for all offense, it's really comparing apples and oranges and I know that's unfair). But what is unfair is that people always say, when talking re someone with mental illness, "is she taking her meds ?" And blame the ill person when things fall apart. It's not that easy. No one would ever get on a cancer patient's case for a relapse, why do we as a society blame a mentally ill person for a situation? It drives me nuts because I take care of someone who is mentally and physically suffering and everyone asks if he's off his meds when he has an episode. No, he's not off his meds, he's suffering from a debilitating mental disease. So you have my full and passionate support. You are not fat and lazy. You have illnesses and you are overwhelmed and your house is a shithole. (Pardon my language). We have all been there, to some degree or another. I cleaned out a trash hoarders house last April/May and got him beautiful new disabled housing and guess what--he's kept it neat and clean. He talks about loving his bedroom. He does laundry and folds it and puts it away. There were 14 years of physical and mental illness reflected in his old place and it was disgusting. I could only clean an hour or two because I couldn't use the bathroom. And afterward I'd go to a local public bathroom and change my clothes and throw out the ones I had worn to his house, put the shoes in layers of plastic bags and start up again. What's the point of this rant? You are not alone, don't give up, this is possible. You are loving, caring, and deserving of a better life. With all my heart, if I had the resources to help you I would. Ps please stop apologizing to us! We lovehaving you here! You are important to us and I feel 100% comfortable speaking on behalf of the community here. Much love ftom Tatoulia | |
| Gem | Posted: 19 December 2014 - 08:51 PM |
I forgot to answer the question about if I had anyone for support if I called APS. My Mom and I have absolutely nobody at all and that's the other reason I'm scared to call them. I'm scared they'd take my Mom, not give her back and then leave me homeless with nowhere to go because they'll probably think I'm fine like everybody else does because I don't look sick. They'd just think I was fat and lazy. | |
| Gem | Posted: 19 December 2014 - 08:31 PM |
Thank you for your replies and that your still replying at all. I closed the freezer as soon as I found it like that. It's still freezing and the fridge is colder then it was yesterday. I'd be more then willing to try and contact Cory directly for a reference. I'd rather do that then calling APS right away. I have the feeling that if I did call that they wouldn't do much to help me get it cleaned. I've been reading stories from people on different sites where their local Adult Services wouldn't help them get help with cleaning either. My Mom isn't so bad off that she needs to be put anywhere. That sleep med isn't for someone with renal issues and I didn't know that until I looked it up. I felt so bad when we were both at the Dr's office that I forgot to ask. He knows her condition though so he should have known the med wasn't for her too. If we could just get help to get this place cleaned out the home health people would come again as long as I got my Mom out of the house to appointments regularly enough. I got the Dr. to prescribe me something for my Bipolar too since trying to get to see someone here is so hard. I'm feeling better mentally since the antibiotics are starting to work. I think they have a program here for people on Medicare/Medicaid that helps with keeping the house clean, house chores and etc.I don't think they help with hoarding though as they only mention light housekeeping. http://www.nminursingmgt.com/index.php?id=34 If we could just get all this crap out of here I could keep the house clean with a little help from that program I linked to above. Well that and getting some more things that would provide storage in different rooms. | |
| Tatoulia | Posted: 19 December 2014 - 03:05 PM |
Gem, you have my support as well. Do not blame yourself for anything. I agree with Dianne's lovely post that it is time to look for a solution--focus your energy on a solution. Calling yourself names or saying bad things about yourself is counterproductive. We understand your feelings of hopelessness and shame and worthlessness. We value you. Would you be willing to email Cory and ask him for a direct referral for someone to help you? Do you have someone who could support you emotionally as you go through the process of calling Adult Protective Services? These are tough decisions. But we will be here for you and you will get through to the other side of this situation. And we will be there for you, too. You are not alone. | |
| Dianne | Posted: 19 December 2014 - 11:22 AM |
Gem, my heart goes out to you. Just shut the freezer door maybe it will kick on again. I say the following with love and concern. There is no condemnation in my words here at all. It's not all your fault but you are desperately in need of help. Circumstances have gotten way beyond your control. In my opinion it's time to call Adult Senior Services to get your mother out of there. I can't imagine they would take her and tell you you're on your own. Yes, it's right before Christmas but it isn't going to be any better next month. There will never be a good time to call so it may as well be sooner rather than later. You've said you're scared of what the results of calling Adult Senior Services will be and how you're going to be blamed. But it sounds like you've tried everything else with nothing working. I really do understand that horrible feeling of helplessness and that all the awful circumstances are all your fault and that people will make you feel worse than you already do if that could even be possible. You're pretty much in a place of which choice is worse ~ dealing with the fallout now of calling in people who will take over or continuing to get worse where you are and having to deal with the authorities in a few months or a year? Gem, only you know how truly bad your situation is and only you can make the choice of how to deal with it. From what you've said I think you've tried your very best to be a good daughter and take care of yourself and your mom with all the hardships you've had. Please trust that there are people in your community who will help you with love and acceptance. Reach out to them. And keep letting us know here how you're doing. God bless ~~ | |
| Gem | Posted: 18 December 2014 - 07:03 PM |
My Mom got up to get an ice cream bar out of the freezer in the middle of the night not long after I went to sleep which was just before 3am. I woke up after 11am and the freezer door was wide open and everything in there was room temperature. I have to throw away so much stuff. She was so doped up on the sleep med Trazodone that the Dr gave her that she takes even when she's been up soooooooo long when she's too tired to be taking it. I had a pie in there I had gotten for us to eat during Christmas that wasn't real cheap and was supposed to be a treat for us since it's always just her and me. Now it's not only thawed but spoiled and I feel like I should be able to stay up 24hrs a day to make sure nothing happens. I'm sick again with 2 infections and so exhausted and seem to stay that way because I can't sleep because of being so on edge and stressed out all the time. I was looking up online what to do if the fridge wasn't cooling after the freezer door gets left open that long. The only solutions I could find was unplugging the thing and having it defrost for a couple days which we can't do because there's nowhere else to store anything cold and it would mean we'd have nothing cold to drink. To bring this back to the hoarding issue there's not enough room in the kitchen to even pull the fridge out that far to unplug it and when there was that thing doesn't move easily. I can't call a repair person because of the incredible mess and he'd have no room at all to work. It's all my fault anyway since I didn't get my butt out of bed in the middle of the night to get her whatever she wanted when I heard her going to the bathroom. I'm so tired of being tired. It's so bad here that even attempting to clean up a little causes so much other stuff to fall that I've almost gotten stuck in place. So even when trying to do what I can it turns into being more then I can do. | |
| G | Posted: 12 December 2014 - 01:54 AM |
HUGS Gem..... I just read this thread and feel for you. Am new, so do not have anything to add outside of not to give up and even if there is 5 mins of something(bag gathering) a day possible to make it to the car for next outing to Dr.(except of course take it to the trash can by car? Still progress.....every little bit helps and every step forward no matter how tiny it is, is a step in the right direction. I understand what it is like to be blamed for things whether at fault or not....with a hoarding situation and the fear around your and your Moms very well being and ability to stay in the house or even keep your freedom, sounds very frightening. Hang in there, stay in touch and even just some bag prep and getting bags into car for outings could help? If not possible, I hope the suggestion does not upset you. Thought I had nothing to offer until I started typing and then that idea came out. Since bags are relatively light, I am hopeful it can be a start until something else falls into line. Keeping you and your Mom in my thoughts..... | |
| Mel99 | Posted: 09 December 2014 - 03:02 PM |
Gem, any update? Other people just don't understand what it's like. It's awful to be harassed and blamed. I'm glad you at least have your mom on your side. Hang in there and keep us posted. | |
| Gem | Posted: 07 December 2014 - 06:04 AM |
I never heard back from the fax. I guess I'll try calling Monday. I just want this stuff out of this house so bad for my Mom the most and for me. That company didn't contact me back either to say if I was wrong. I want to call the Adult Senior Services but like I mentioned before I'm scared about what kind of results that could have and especially before Christmas. I just know when I do eventually call them I'm going to be the one that gets treated badly, criticized and told how everything is my fault and how I should have known better then to let things get this bad. I'm always the one who gets blamed for everything. Not by my Mom but by everyone else. | |
| Dianne | Posted: 25 November 2014 - 10:24 AM |
Gem, that was a good idea faxing a link to this site to the Ph.D. so he/she can get an idea of your needs. If it gets lost in the holiday week work load go ahead and make the call next week. It will be time consuming but worth the effort. And it's good you caught the mistake with MS and MO. It's easy for people to confuse the two with both Mississippi and Missouri beginning with Miss. Wishing you and your mom a Thanksgiving filled with love and gratefulness for each other and the blessings in your lives. 🙂 | |
| Gem | Posted: 24 November 2014 - 01:01 PM |
I sent a free fax online through a site that does that to the listing for the Ph.D on the MS resource page with a link to this thread asking for help in finding someone to help locally. I thought that might work better then trying to call that behavioral health center and trying to explain all of this on the phone. Hope they'll take the time to read here. I also used the link to contact the company listed for MS to confirm that they don't help people here. I think that listing is supposed to be for Missouri and other Midwest states. | |
| Dianne | Posted: 21 November 2014 - 09:48 AM |
Gem, Katrina was a long time ago but the effects of a disaster that large put ongoing pressure on an already strained system. And sadly, in today's world, news jumps to the latest tragedy (I say that with respect) and people tend to forget the struggles and sufferings that can take many years to overcome. I had a small experience with Katrina but it's clear in my mind. I was working at a new facility that could house over 400 dogs and dozens of cats. We had top of the line vet facilities. One day a massive truck pulled in packed front to back, top to bottom with dogs in crates. It took many months to care for the dogs to the point where they were healthy again, physically and emotionally. All had been traumatized. Most were hound mixes. Some were micro chipped but the owners could not be located because they had been displaced. Since some dogs had been running loose for weeks before being caught they were pregnant. Eventually every dog was adopted out. I can only imagine the pain of the owners who were separated from their pets wondering where they were, if they were still alive, if someone had taken them in. Rehoming pets was such a tiny part of the overall rebuilding. You have to have massive strength to have dealt with such loss and destruction and trying to come back from that. Mix in the physical issues you and your mom have had/do have and it's not at all surprising that years later Katrina still affects your lives. I hope you've been able to see your doctor and that you're both feeling better. You'll be able to tackle other things after that. Glad to hear you're not giving up! Setbacks are just that ~ you *set back* for awhile, assess the situation and get back at it. 🙂
| |
| Gem | Posted: 19 November 2014 - 09:12 AM |
I'm used to people loosing interest or balking when mentioning anything having to do with Katrina. Most people are of the notion that it was so long ago that people who were affected should be over it by now. I'm not giving up on this. Got no replies to my emails. My Mom and I are both sick right now though so I'm trying to get us appointments with our Dr. So trying to contact anyone about the house situation is on hold just for a bit. Thanks for everyone here who've been so understanding and compassionate. I keep forgetting to or falling asleep when the chats happen in the chat room. Hoping to make it Sunday. I fell asleep for what was supposed to be a nap yesterday and slept until about 5am. Oops. 🙂 | |
| Dianne | Posted: 15 November 2014 - 10:02 AM |
Hi Gem, My computer was broken for a few days. It's still not where it needs to be but I wanted to catch up here before taking it back in for service. First, WTG! for plugging along trying to find help. It can be very frustrating especially in an area that was hard hit by Katrina. (I'm assuming Katrina.) So many resources are still spread thin. I just tried Cali Gal's suggestion and googled Mississippi Home Health Care Agencies. Sorry I can't do links. That site has a place to search the state by zip code. There was also a phone number ~ 601-359-4929 or 4525. I prefer to email too because I also express myself better in writing but you may get a quicker response by trying to get a real person on the phone. They have a Homemaker Program that sounds perfect for your needs. Although the site lists home care costs at $16.50 an hour in MS compared to $15.00 in Louisiana and $16.90 in Arkansas the site says the service is provided at no cost to an older person. They do solicit contributions. Even though your mom is only 62 maybe in talking to you on the phone the service representative could make an exception. Or at least give suggestions specific to your area. Tat's suggestion about local colleges is good too. Or maybe a local church group would volunteer an afternoon. Your trash doesn't sound like a health hazard. I'm leery of Craig's list too. My brother uses it with no problem. But you need to follow your comfort level with who you allow into your home. | |
| Gem | Posted: 15 November 2014 - 09:09 AM |
I'm not sure what to look for on Craigslist. Honestly I'm kind of scared to invite people to our home from there if that makes sense. Did I chase everyone off with my last two replies? If I did I apologize. | |
| Tatoulia | Posted: 13 November 2014 - 06:16 AM |
Can you check Craig's list to see if there are any day labor era or handymen that can come over? You could coordinate with a dumpster. I am so touched by your story. I want you to find some help. | |
| Gem | Posted: 13 November 2014 - 01:00 AM |
We're in MS. There's a shrink listed under resources for this state then the cleanup company listed doesn't actually serve MS and is listed in the wrong place. My Mom is 62 so I don't know if she'd qualify for the program mentioned but I'll try and look to see if I can find something like that. I didn't hear anything back from the couple of emails I sent off early Wednesday morning. As I mentioned before if some people came to the door tomorrow and said they'd take away all this trash and etc. we'd welcome them in to let them. We're not attached to the trash at all. With all the trash and etc. gone we'd actually have space for our actual stuff that's under some of the piled up empty boxes and etc. We'd have room for pieces of furniture even if they were cheap garage shelves that could provide storage. It's just so frustrating because in my head I can get rid of all this stuff and do what I want to to but physically it's not that easy. | |
| Cali Gal | Posted: 12 November 2014 - 06:43 PM |
Gem - Good Luck and keep us posted! 🙂 Chin up always! | |
| Tatoulia | Posted: 12 November 2014 - 04:11 PM |
Gem, have you checked the companies in this site? I'm not sure what state you are in but I have it on good authority that there is at least one company listed for each state. I don't know the $$. Please keep us posted. | |
| Tatoulia | Posted: 12 November 2014 - 11:36 AM |
Gem, do you live anywhere near a college? Because I'm wondering if you could post a job for several strong college students to come out for an afternoon to put things in dumpster. You could rent a dumpster for a day or two and pay the college students $10 an hour. Will you and your mother be able to let the trash go that easily? Or do you need help from someone who can provide emotional support during the trash clean up? Please keep posting. We will provide you with encouragent and support when you are feeling like you are at your wits' end. We will help you through this. | |
| Gem | Posted: 12 November 2014 - 03:49 AM |
We're in the South so finding help here for just about anything is kind of hard. I've googled and haven't been able to find anything in this area that would be helpful. I did find a page with the county's senior service outreach department email address. I am much better putting my thoughts and what's going on into print then over the phone. On the phone or even in person I get so very nervous that I get jumbled, flustered and etc. So I sent an email to the email address I found. I tried looking up small trash haulers but all I could find were companies that rent out dumpsters and the company that picks up trash in the area. If someone appeared at our door tomorrow with people to get this stuff out and a way to haul it away I'd tell them to have at it. Most of it is trash bags, empty boxes and pizza boxes. The rest of it is stuff in boxes I've ordered that has had no place to go. Most of the boxes that have that kind of stuff in them are underneath the piles of empty ones though. After we finally got to move in after being stuck in that FEMA trailer for years we didn't and still don't have much furniture. My Mom moved back into this house while I was sick in early 2012 as I mentioned before. The volunteer group that fixed our home gave us some furniture but it wasn't much that was easy to use for people with mobility issues. Instead of a basic dinner table with a couple chairs they put a heavy breakfast table with a fake marble looking top and two high stools for seating with that, a couch that neither of us can barely get off of, a highback chair, 2 dresser drawer sets and one full size bed. Since we didn't move in immediately after they were done they came in and took one of the two beds they had given us and gave it to someone else since they still had keys to our home. We were thankful for what we got but with no outside help that might deliver for a small fee we couldn't go to someone like The Goodwill and get additional furniture we could actually use. During one of my Mom's hospital stays in this past year we got one of the Dr's to prescribe a hospital bed for her so now she has her own bed in her own room. I've tried my best to keep all of this crap out of her room but some boxes of actual stuff have gotten into her room in a corner but in an area out of the way. Thank you all for your replies and understanding. I'm so used to being told what I've done wrong, how I've screwed up and etc. by everyone except my Mom. It's easier for people to be like that instead of asking the person they are criticizing if they need help because if they ask the response they get may actually force them to have to help in some way. | |
| Dianne | Posted: 11 November 2014 - 08:41 AM |
Gem, I love the long post! Helps us get to know you better, no apologies necessary at all. You and your mom have certainly had much more than your share of troubles. And you are both very strong women to have kept going against all the obstacles. I'm sorry there hasn't been family or friends to help out. But you will get plenty of support here. Just having people to *talk* to can make your burden a little lighter. Dave had some good suggestions about getting the trash out. You mentioned your balance problem coming back up the hill. Can you get one of those canes that has a base with 4 small feet on it? Go to mobilitycare.com and look at rollators. They are cool things that help you keep good balance and transport small things. You can also sit on them if you need a rest. Looks like they average $150 with a few heavy duty models over $200. That beats paying the other woman $200 for 1 hour of her services and another $200 for her friend. All that sparkly, festive Christmas stuff on tv is hard to ignore. But it is very, very stressful trying to make those perfect Christmases in real life. You have your mom and she has you and doing what you can for each other is the best Christmas gift. If you can get one of those battery powered candles those are nice to look at and can give that sense of light and warmth that underlies the season. We're here for you. 🙂 | |
| Tatoulia | Posted: 10 November 2014 - 04:22 PM |
Here to offer support, Gem. I tell you from the bottom of. my heart I wish I had the resources to come out and help you. I have a question: I'd not for the physical issues, would you be able to get rid of the trash? If someone came right now and worked for an afternoon, would you and your mother allow the person to take the trash out/haul it away? Will one it more of you need to look at each bag first? We will support you here. You can have a warmer and nicer Christmas this year. Maybe not the ones you see on tv, but better than you have right now. Keep your chin up, Gem. | |
| Dianne | Posted: 10 November 2014 - 12:09 PM |
Whoa Gem, do NOT pay that woman and her friend $400 and hour to help you!!! In case you missed it here is the reply Dave posted to you in Cleanup Help. Taking what you've said at face value, it does not sound to me like you need a $200 an hour organizer to start. What it sounds to me like you need is a trustworthy small trash hauler. Someone that would have a large truck and 2 guys you could trust to be in the house with you and your mom. Then on an ongoing basis, you need some kind of help to get your trash to the curb for pickup. That is the approach I would be looking at in my locale anyway. Is there any kind of community assistance/disabled assistance/elder assistance organization in your area that you discuss the need for that kind of help over the phone with? | |
| Gem | Posted: 10 November 2014 - 12:45 AM |
Holy crap I didn't realize my last reply was so long. I apologize for that. I've googled and searched my fingers out. That's how I ended up finding that organizer that wanted over $200 per hour for her and $200 per hour for a friend of hers since she figured my issues were too much to handle on her own if she could help at all | |